Joaquin Niemann commits prize money to help ailing cousin

RELATED POSTS

SAINT SIMONS ISLAND, Ga. – Joaquin Niemann missed the Masters last week after testing positive for COVID-19. It sounds like a horrible twist of fate until you consider that the 22-year-old Chilean is dealing with graver medical concerns.

Niemann’s one-month-old cousin, Rafita Calderon, was diagnosed with Spinal Muscular Atrophy, a rare genetic disease that affects about one in every 10,000 babies born every year. Calderon is battling for his life, desperately needing a one-time injection of Zolgensma, a drug which according to Niemann costs $2.1 million.

Calderon is at a medical center in Santiago, five hours from where the family lives, awaiting treatment.

“When they told me that is going to have like a really bad disease I didn’t realize what it was, like I didn’t put like much attention on it,” Niemann said of the disease that is the No. 1 genetic cause of infant death. “Then a couple days go on, they tell us the bad news, that this medicine was this much amount of money … I was in my mind going crazy, ‘what can I do to help out?’”

here.

Related Posts

RECOMMENDED

Welcome Back!

Login to your account below

Create New Account!

Fill the forms below to register

Retrieve your password

Please enter your username or email address to reset your password.

Add New Playlist